Tuesday, May 27, 2008

May is almost over, school is coming to an end shortly and the weather is getting better, hopefully summer is finally starting!!!!!!

We went to the aquarium for dreamnight and the kids seemed to all have fun and got to touch and see things they don't usually get to on a normal day. Sebastian smiled and we have not seen that in months....Bentley was so excited about Indiana Jones movie opening that he has seen it twice!
Sebastian is doing ok, thats all i really know. We seem to start feeling comfortable with how his breathing is, have gotten a bit used to his eyes rolling back and passing out but then he takes a breath. But then bam he does another 5 minuter! Scary but there just doesn't appear to be anything to do for him. He doesn't have the energy or excitement he used to and he now is having so many more seizures, from the lack of oxygen. Stel's work has been painfully slow, but on the upside he has been able to be home with Sebastian more. We were able to take Isabelle out to the park a bit on her own which she enjoyed so much.

Isabelle likes taking all the little hats off bentley's lego storm troopers!!!climbing around at stanley park

1 comment:

Tamie said...

Thanks for the update Jen. I check daily hoping to hear some good news. Love hearing that Sebastian is flashing that award winning smile of his. Looking forward to seeing all of you in a few weeks (hopefully). The kids look great!