Friday, December 12, 2008

It has been brought to my attention by some that I have been very behind in my updates. I can't seem to sleep tonight so here's what i've got.

It is the Christmas Season, with less than 2 weeks before the Jolly man in red should arrive I am not feeling very festive or merry, but think I should actually pick up some presents for the kids...

Sebastian was again admitted into Canuck Place Hospice for a deterioration in his breathing. Since arriving last weekend most days he has changed a bit and gotten worse. He is very well medicated, with both morphine and fentanyl and is, in the most part comfortable. I had not really thought, or possibly tried not to think about what was really going on till I was talking to one of our favorite nurses yesterday afternoon and she said that our stay has been extended till?? Then in the evening with Sebastian breathing and on his 6 litres of oxygen his sat's hovering in the 50's his night nurse telling me what a great life he has had and how tired and grey he is looking. He has been going downhill for some time now and his body is fighting so hard we are very unsure what this festive holiday season will bring. I do know, though, that Stel has taken the next couple days off work to spend some more time.

6 comments:

Tamie said...

This is so heartbreaking Jen. You are always in our prayers and we think about you daily. If there is anything I can do, just ask.

Ms.L said...

I am so sad for you all.
Will continue to include you in our thoughts and prayers.

doubledouble said...

I don't know what to say Jen... it doesn't seem possible to me... how can anyone fathom this...

I will say that your devotion and closeness to Sebastian and his VERY apparent desire to show his devotion back through his miraculous fight is VERY amazing!!!

It makes everything all the harder, but that is what an amazing Mom would do for her child, and somehow you always find a way to give more than the most.

Love you all.

LMK said...

Jen,
I don't know what I can say that could possibly make you feel any better... I can't imagine what you are going through right now, how you feel...
Please know that you are, as always, in my thoughts. I am praying for you, your family and for Sebastian.
You need anything, i will do it.
Lianne

Shirley said...

I am so very sorry, Jen.
Sebastian has fought so hard and you have always shown such love and courage in helping him and all your family through this.

Despite the ongoing struggles, you and Stel have always pushed to have a full and joyous life with all your children. I feel very priviledged to have shared some of this time with Sebastian and your family. If I can do anything at all at this time...

Anonymous said...

I'm so very sorry Jen. You have all fought so very hard, especially Sebastian. You are in our thoughts all the time and if you need anything at all just let us know. You have all our love and support.
Kelly