We just got home last night from being in Canuck Place with Sebastian for a while.
Sebastian is not absorbing his feeds well, though has to be absorbing some, he is continuing to lose weight and is just not the happy aware boy we are so used to. While there it also became quite clear that his heart rate is slowing down as well. They did not have any good answers but time will tell.
Stel is now less than 2 weeks away from race day! Sure is coming up fast